Resources

As pulmonary arterial hypertension (PAH) is a challenging disease to identify, a range of diagnostic tools, guidelines, educational programmes and expert opinion videos have been developed to help with the diagnosis and treatment of PAH.

 

Leven met PAH

Leven met PAH is an information point, community and living encyclopedia about pulmonary arterial hypertension targeting patients and their caregivers. It is tailor made for both Dutch and Belgian audiences, and available in different languages:

These websites sites are managed in accordance with local laws and managed by Janssen-Cilag, who is solely responsible for the content.

 

De Langste Adem

De Langste Adem tries to give insights in the relative unknown world of pulmonary arterial hypertension by following a group of experts in The Netherlands, who fight every day for a small group of vulnerable patients.

 

New webisodes are published regularly on www.langsteadem.nl while the original documentary which was released in 2018 is still available to watch completely.

Right Heart echo

Discover which parameters are important for PH when performing an echocardiography of the right heart.
http://inform.janssen-emea.com/actelion-rh-echo-nl / http://inform.janssen-emea.com/actelion-rh-echo-fr

Protocols for carrying out echocardiography as part of the diagnostic procedure are detailed below, along with the two recommended guidelines for the diagnosis and treatment of PAH.

European guidelines
2015 ESC/ERS guidelines on the diagnosis and treatment of pulmonary hypertension

The Joint Task Force for the Diagnosis and Treatment of Pulmonary Hypertension of the European Society of Cardiology (ESC) and the European Respiratory Society (ERS): Endorsed by: Association for European Paediatric and Congenital Cardiology (AEPC), International Society for Heart and Lung Transplantation (ISHLT).
Galiè N et al. Eur Heart J 2016; 37:67–119. 
Published: February 2015
https://doi.org/10.1093/eurheartj/ehv317

International guidelines
An overview of the 6th World Symposium on Pulmonary Hypertension

Galiè N et al. Eur Respir J 2019; 53:1802148.
Published: January 2019
https://doi.org/10.1183/13993003.02148-2018

Information booklet (Dutch)

A convenient booklet with information about symptoms and tests to help cardiologists, pneumologists, rheumatologists with the diagnosis of PAH.

 


 

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